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    Last Updated: 10/30/2025

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    MediFind found 23 doctor with experience in Dysferlinopathy near Ann Arbor, MI. Of these, 18 are Experienced, 4 are Advanced and 1 are Distinguished.

    Location
    LocationClose
    23 providers found
      Distinguished in Dysferlinopathy
      Physiatry | Neuroradiology
      Distinguished in Dysferlinopathy
      Physiatry | Neuroradiology

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Mary Schmidt is a Physiatrist and a Neuroradiologist in Ann Arbor, Michigan. Dr. Schmidt is rated as a Distinguished provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Dysferlinopathy, Spinal Muscular Atrophy (SMA), Spinal Muscular Atrophy Type 3, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease). Dr. Schmidt is currently accepting new patients.

      Advanced in Dysferlinopathy
      Neurology | Pediatrics | Pediatric Neurology
      Advanced in Dysferlinopathy
      Neurology | Pediatrics | Pediatric Neurology

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Erin Neil-Knierbein is a Neurologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Neil-Knierbein is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Pompe Disease, Danon Disease, Dysferlinopathy, and Duchenne Muscular Dystrophy. Dr. Neil-Knierbein is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Dysferlinopathy
      Advanced in Dysferlinopathy
      2205 Commonwealth Blvd, 
      Ann Arbor, MI 
       (3.0 miles away)
      Languages Spoken:
      English, Polish, Spanish
      Accepting New Patients

      Timothy Krater is a Physiatrist in Ann Arbor, Michigan. Dr. Krater is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Cerebral Palsy, Spastic Diplegia Infantile Type, Dysferlinopathy, Spasticity, and Rhizotomy. Dr. Krater is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Dysferlinopathy
      Advanced in Dysferlinopathy
      Ann Arbor, MI 
       (4.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Angeline Bowman is a Physiatrist in Ann Arbor, Michigan. Dr. Bowman is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Cerebral Palsy, Myotonia Congenita, Spasticity, and Spastic Diplegia Infantile Type. Dr. Bowman is currently accepting new patients.

      Advanced in Dysferlinopathy
      Advanced in Dysferlinopathy

      Regents Of The University Of Michigan

      24 Frank Lloyd Wright Dr, 
      Ann Arbor, MI 
       (4.0 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Gianna Rodriguez is a Physiatrist in Ann Arbor, Michigan. Dr. Rodriguez is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Neurogenic Bowel, Paraplegia, Spasticity, and Autonomic Dysreflexia. Dr. Rodriguez is currently accepting new patients.

      Experienced in Dysferlinopathy
      Pediatric Neurology | Psychology | Pediatrics
      Experienced in Dysferlinopathy
      Pediatric Neurology | Psychology | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English, Mandarin
      Accepting New Patients

      Ava Lin is a Pediatric Neurologist and a Psychologist in Ann Arbor, Michigan. Dr. Lin is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Inclusion Body Myositis, Familial Dysautonomia, Charcot-Marie-Tooth Disease, and Sensorimotor Polyneuropathy. Dr. Lin is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Edward Claflin is a Physiatrist in Ann Arbor, Michigan. Dr. Claflin is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Hemiplegia, Stroke, Spasticity, and Central Pain Syndrome. Dr. Claflin is currently accepting new patients.

      Experienced in Dysferlinopathy
      Neurology
      Experienced in Dysferlinopathy
      Neurology

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Ann Little is a Neurologist in Ann Arbor, Michigan. Dr. Little is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Inclusion Body Myositis, Polymyositis, Myasthenia Gravis, Transmyocardial Revascularization, and Stent Placement.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English, Arabic
      Accepting New Patients
      Offers Telehealth

      Maryam Berri is a Physiatrist in Ann Arbor, Michigan. Dr. Berri is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Brown-Sequard Syndrome, Autonomic Dysreflexia, Spasticity, and Neurogenic Bowel. Dr. Berri is currently accepting new patients.

      Experienced in Dysferlinopathy
      Physiatry | Pain Medicine | Neuroradiology
      Experienced in Dysferlinopathy
      Physiatry | Pain Medicine | Neuroradiology

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Anthony Chiodo is a Physiatrist and a Pain Medicine provider in Ann Arbor, Michigan. Dr. Chiodo is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Spasticity, Autonomic Dysreflexia, Paraplegia, and Spinal Stenosis. Dr. Chiodo is currently accepting new patients.

      Experienced in Dysferlinopathy
      Neurology | Neuroradiology
      Experienced in Dysferlinopathy
      Neurology | Neuroradiology

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Zachary London is a Neurologist and a Neuroradiologist in Ann Arbor, Michigan. Dr. London is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Myasthenia Gravis, Peripheral Neuropathy, Chronic Inflammatory Demyelinating Polyneuropathy, and Chronic Polyradiculoneuritis. Dr. London is currently accepting new patients.

      Experienced in Dysferlinopathy
      Neurology | Neuroradiology | Physiatry
      Experienced in Dysferlinopathy
      Neurology | Neuroradiology | Physiatry

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English, Italian
      Accepting New Patients

      Eva Feldman is a Neurologist and a Neuroradiologist in Ann Arbor, Michigan. Dr. Feldman is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Diabetic Neuropathy, Peripheral Neuropathy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Autonomic Neuropathy, and Laminectomy. Dr. Feldman is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Experience:
      43+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Roger Albin is a Neurologist in Ann Arbor, Michigan. Dr. Albin has been practicing medicine for over 43 years and is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Parkinson's Disease, Movement Disorders, Huntington Disease, Dementia, and Deep Brain Stimulation. Dr. Albin is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Experience:
      9+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Alan Salgado is a Neurologist in Ann Arbor, Michigan. Dr. Salgado has been practicing medicine for over 9 years and is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Spinal Muscular Atrophy Type 3, Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy (SMA), Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Thrombectomy. Dr. Salgado is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Regents Of The University Of Michigan

      325 E Eisenhower Pkwy, 
      Ann Arbor, MI 
       (2.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Cory Wernimont is a Physiatrist in Ann Arbor, Michigan. Dr. Wernimont is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Neurogenic Bowel, Spasticity, Foot Drop, and Paraplegia. Dr. Wernimont is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Regents Of The University Of Michigan

      325 E Eisenhower Pkwy, Umhs Burlington Building, 
      Ann Arbor, MI 
       (2.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Heidi Haapala is a Physiatrist in Ann Arbor, Michigan. Dr. Haapala is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Cerebral Palsy, Spastic Diplegia Infantile Type, Spasticity, and Moebius Syndrome. Dr. Haapala is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Regents Of The University Of Michigan

      325 E Eisenhower Pkwy, Umhs Burlington Building, 
      Ann Arbor, MI 
       (2.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Alex Donaghy is a Physiatrist in Ann Arbor, Michigan. Dr. Donaghy is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Phantom Limb Pain, Hereditary Neuralgic Amyotrophy, Thoracic Outlet Syndrome, Brachial Plexopathy, and Leg or Foot Amputation. Dr. Donaghy is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy
      325 E Eisenhower Pkwy, 
      Ann Arbor, MI 
       (2.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Zachary Schott is a Physiatrist in Ann Arbor, Michigan. Dr. Schott is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Opisthotonos, Muscle Spasms, Distal Median Nerve Dysfunction, and Chronic Pain. Dr. Schott is currently accepting new patients.

      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine

      Regents Of The University Of Michigan

      1801 Briarwood Cir, 
      Ann Arbor, MI 
       (2.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Keturah Schacht is a primary care provider, practicing in Family Medicine in Ann Arbor, Michigan. Dr. Schacht is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Type 2 Diabetes (T2D), Maturity Onset Diabetes of the Young, Obesity in Children, and Obesity. Dr. Schacht is currently accepting new patients.

      Experienced in Dysferlinopathy
      Pediatrics | Internal Medicine
      Experienced in Dysferlinopathy
      Pediatrics | Internal Medicine

      Iha Health Services Corporation

      3200 W Liberty Rd, Suite C, 
      Ann Arbor, MI 
       (2.8 miles away)
      Languages Spoken:
      English, Mandarin
      Accepting New Patients
      Offers Telehealth

      Hongyan Yang is a primary care provider, practicing in Pediatrics and Internal Medicine in Ann Arbor, Michigan. Dr. Yang is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Heart Failure with Preserved Ejection Fraction (HFpEF), Duchenne Muscular Dystrophy, Dystrophinopathy, and Limb-Girdle Muscular Dystrophy Type 2I. Dr. Yang is currently accepting new patients.

      Showing 1-20 of 23

      Last Updated: 10/30/2025

      What is the definition of Dysferlinopathy?

      The diseases in the group are: All dysferlinopathies are caused by pathogenic variations in the DYSF gene which result in a deficiency of the protein dysferlin (hence, the name), important for the efficient repair of muscle fibers. Inheritance is autosomal recessive.

      When should I see a Dysferlinopathy doctor near Ann Arbor, MI?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Dysferlinopathy doctor near Ann Arbor, MI?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Dysferlinopathy doctors near Ann Arbor, MI?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Dysferlinopathy doctors near Ann Arbor, MI?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Dysferlinopathy doctor near Ann Arbor, MI?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dysferlinopathy doctor search results page. 

      Why is it important to get a second opinion from a different Dysferlinopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Dysferlinopathy doctor near Ann Arbor, MI?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Dysferlinopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Dysferlinopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Dysferlinopathy doctors near Ann Arbor, MI?

      Look for the filter feature on the left side of the Dysferlinopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Dysferlinopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the Dysferlinopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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